Intellectual and developmental disabilities can affect learning, communication, reasoning, problem-solving, adaptive skills, and daily functioning. These conditions vary widely in how they affect children and adolescents, and support needs may range from mild to significant.

The resources below are intended to help healthcare providers, families, educators, and other professionals identify developmental concerns, understand when further assessment may be helpful, and connect children and adolescents with appropriate evaluation, supports, and services.

Screening and Assessment

Developmental screening tools may be used by healthcare, early childhood, school, and other appropriately trained professionals to identify children who may be at risk for developmental delays. Screening does not diagnose an intellectual or developmental disability. A positive screen or ongoing concern should be followed by further developmental evaluation and referral for appropriate services.

Survey of Well-Being of Young Children (SWYC)
A free, comprehensive developmental screening tool that assesses developmental milestones, behavioral and emotional functioning, and family risk factors.
Ages: 1–60 months
Completed by: Parent/caregiver
Time: approximately 15 minutes or less
Languages: English, Spanish, and multiple additional translations are available.

Ages & Stages Questionnaires, Third Edition (ASQ-3)
A parent-completed developmental screening tool that assesses communication, gross motor, fine motor, problem-solving, and personal-social development.
Ages: 1–66 months
Completed by: Parent/caregiver; scored and reviewed by trained staff
Time: approximately 10–15 minutes
Note: ASQ-3 is a proprietary instrument and requires purchase.

Clinical Guidance

AAP – Developmental Surveillance and Screening
Guidance for healthcare professionals on developmental surveillance, use of standardized screening tools, referral, and follow-up when developmental concerns are identified.

AACAP Practice Parameter for Children and Adolescents With Intellectual Disability
Clinical guidance on the assessment and treatment of psychiatric and behavioral concerns in children and adolescents with intellectual disability.

Websites

American Academy of Pediatrics – Developmental Disabilities Resources
Family- and provider-friendly information about developmental disabilities, recognizing concerns, early intervention, referrals, and available supports.

CDC – Learn the Signs. Act Early.
Developmental milestone information, checklists, tools, and guidance for families and professionals on what to do when concerns about a child’s development arise.

The Arc
National information, advocacy, and resources for individuals with intellectual and developmental disabilities and their families across the lifespan.

American Association on Intellectual and Developmental Disabilities (AAIDD)
Professional information and resources related to intellectual and developmental disabilities, assessment, supports, research, and policy.

Resources

AAP – Developmental Disabilities Resources: Family Guide
A practical guide for families on recognizing developmental concerns, seeking evaluation, accessing early intervention, and finding additional supports.

CDC – Child Development Resources
Free developmental milestone information, parenting resources, and practical materials for families supporting children at different stages of development.

CDC – Learn the Signs. Act Early. Resources
Free milestone checklists, family handouts, referral guidance, and tools to help families and professionals recognize and respond to developmental concerns.

The Arc – Disability Resources, Guides & Tools
A large collection of practical resources for individuals with intellectual and developmental disabilities, families, and professionals, including mental health, education, advocacy, and future planning.